“Learn the art of fragmented, irrational conversations and follow
the patient’s lead instead of trying to control the dialogue.”
Zen and the Art of Coping With Alzheimer’s
In the days when there were video stores I would walk by the film “Iris” countless times, knowing it was a story of the writer Iris Murdoch and her husband’s experience with her cognitive decline due to Alzheimer’s disease.
“Few patients realize how deeply they can affect their doctors,” notes Dr. Scott Haig. In his Time Magazine article (10/5/2007) he goes on to say, “That is a big secret in medicine, which doctors hate to admit.
I recently stumbled upon a writing exercise completed by a patient who participated in the “Writing is Good Medicine”TM, program, which I created to help patients put words to their experience of living with illness. Participants were encouraged to share their writing with family and healthcare providers in order to open communication about issues and concerns. For one exercise I posed the question, “What do you expect from your doctors?”
UNCERTAINTY IS THE REFUGE OF HOPE
The Journal Intime
Henri Frederic Amiel
Recently, I was reminded of a patient from time passed who had asked me, “How does one live with uncertainty?”
In The Wounded Story Teller writer and patient Arthur Frank notes, “When a doctor tells us we are sick they are not just diagnosing us—they are initiating a new chapter in the story of our lives. What would it be like for patients to tell their stories and doctors to read them?”
I confessed that I often ignore the rules of punctuation.
“Learn the art of fragmented, irrational conversations and follow the patient’s lead instead of trying to control the dialogue.”
– Zen and the Art of Coping With Alzheimer’s
Denise Grady, New York Times (August 14, 2007)
Recently a colleague e-mailed me the link to Jane Brody’s New York Time’s article Alzheimer’s Patients Keep The Spark Alive by Sharing Stories.