“We need to raise our voices a little more, even as they say to us,
‘This is so uncharacteristic of you.’ Invisibility is not a natural state for anyone.”
MitsuyYamada

After each of our SpeakSooner community education programs I would ask myself, “How did this program differ from the one before? And, what was the take away?” I often wonder if others ask themselves the same questions.

What brought this to mind was an e-mail I received from a hospice social worker who often attends our community programs.

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I don’t know who it was that said poetry is defined as a language writing itself out of a difficult situation. What I know is illness is one of those situations.  (more…)

When I was first diagnosed,” she said, “I didn’t feel I needed your help. I know how to get what I need—I’m a nurse, we speak the same language.” (more…)

I often think about what the writer and patient Anatole Broyard said, “Stories are the antibodies against illness.”

It’s hard enough that a diagnosis comes along to threaten our lives—does it also have to threaten our life stories?   (more…)

“When I think of people in waiting rooms, including myself, I picture us rifling restlessly through battered magazines,” writes Rachel Hadas, Guest Editor of  “The Waiting Room Reader II:  Words to Keep You Company”.

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To be a person is to have a story to tell.  —Isak Dinesen

It’s hard enough that a diagnosis comes along to threaten our lives—does it also have to threaten our life stories? (more…)

And now we welcome the New Year. Full of things that have never been…
-Rainer Maria Rilke

With the coming of each New Year I think about what has passed, passing and to come. But today I find myself not reflecting on 2016. Instead, (more…)

Tacked to my bulletin board within my line of sight are the words of Dr. William Osler,a 19^th century physician who pioneered taking medical students out of the classroom to learn at the bedside. Dr. Osler understood that medicine was more than science. He encouraged the students to:

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For those of you who were not able to attend our most recent SpeakSooner community education program “Being A Caregiver & Caring for Oneself: A Delicate Balance” (August 16 at the Manchester Community Library), I’d like to share a moment from that evening. (more…)

I received an e-mail from a friend. The subject: “Regret is an important teacher…” My eyes focus on the ellipsis, not the Huffington Post link. I think about the power of three small dots to punctuate what is left unsaid. In an instant my mother’s words, which in time had become her mantra, echoed in my mind’s ear: “You never regret what you don’t say.” (more…)