We often hear the term “new normal” used in describing lifestyle changes resulting from the COVID-19 pandemic. However, those words are familiar to cancer patients.
Ventilators and their vital role in saving lives of COVID-19 patients are ever present in the news. Listening to these compelling stories brought to mind an experience with a patient as he weighed the use of a breathing machine in his end of life care.
I recall a patient telling me that she played “peekaboo” with her cancer diagnosis. She described how hard it was to think about an uncertain future and the prospect of dying. She needed time to look away and catch her breath. How can any of us keep our eyes wide open without a reprieve when […]
“In times of crisis we summon our strength…
call on every resource…every forgotten image…
every memory that can make us know our power.”
– Muriel Rukeyser
How does one live with uncertainty when facing a life-threatening illness? Where does one find inner strength? Where does one look for supportive resources? Most patients will tell you that they frequently ask themselves these questions.
“When I completed medical school and residency in the Northeast, I rarely thought about the intersection of religion and medicine. But when I moved to the South for a combined fellowship in pediatric hematology-oncology and hospice and palliative medicine, I found myself enrolled in a crash course at the bedside,”
We expect doctors to provide state of the art care and help us get better from whatever ails us. By nature, patients are self-centered and believe that doctors should only be concerned about our problems.
In my previous blog “Waiting for Test Results” I shared a conversation from the early 2000’s that I had with a receptionist at the cancer center about responding to inquiries for test results.
Those familiar with my work as a medical humanist would not be surprised to hear that I’m still having conversations with patients about the challenges of navigating the healthcare system.
It’s a new year but I find myself reflecting on times past. So much for the lyrics of Auld Lang Syne, “Should old acquaintance be forgot and never brought to mind.”
What catapulted me back in time was a recent article in the Journal of The American Medical Association (JAMA) that highlighted the patient’s perspective of illness.
Adrienne Barnes, a nurse diagnosed with pancreatic cancer, was featured in “Voices From The Lived World of Illness,” a video produced by the Center for Communication in Medicine. During the interview she shared her frustrations when her doctor tells her “there’s really nothing I can do for you.”