THE SCENT OF WORDS

“In illness words give out their scent…
if at last we grasp the meaning, it is
all richer for having come to us…”

Virginia Woolf
On Being Ill (1930)

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One of the things I’ve heard many patients speak about is how their diagnosis resulted in what felt like an identity crisis—it seemed to change “who they were” nearly instantly, and in a very fundamental way. (more…)

As the year 2017 is coming to a close and a new year is approaching I find myself thinking about what has passed and what’s to come. (more…)

Each month I receive an online newsletter from “Cancer.Net”.  The newsletter provides approved information to help patients and families make informed healthcare decisions. A recent issue titled “What is Tumor Board?” catapulted me back in time. (more…)

A colleague recently forwarded a New York Times article, “The Appointment Ends. Now The Patient is Listening.” The author Paula Span notes new efforts to help patients understand their health status by recording appointments.  (more…)

The title of one of my previous blogs in and of itself posed an important question: “What Is A Good Patient?” How one defines a “good patient” varies, as does their reason for wanting to be one. During my tenure as a Medical Humanist at Southwestern Vermont’s Regional Cancer Center I witnessed the difficult task doctors faced in reconciling those who became patients—to their illness.  (more…)

“We need to raise our voices a little more, even as they say to us,
‘This is so uncharacteristic of you.’ Invisibility is not a natural state for anyone.”
MitsuyYamada

After each of our SpeakSooner community education programs I would ask myself, “How did this program differ from the one before? And, what was the take away?” I often wonder if others ask themselves the same questions.

What brought this to mind was an e-mail I received from a hospice social worker who often attends our community programs.

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I don’t know who it was that said poetry is defined as a language writing itself out of a difficult situation. What I know is illness is one of those situations.  (more…)

When I was first diagnosed,” she said, “I didn’t feel I needed your help. I know how to get what I need—I’m a nurse, we speak the same language.” (more…)

I often think about what the writer and patient Anatole Broyard said, “Stories are the antibodies against illness.”

It’s hard enough that a diagnosis comes along to threaten our lives—does it also have to threaten our life stories?   (more…)