False Hope

I was recently reading the transcript of the “Voices from the Lived World of Illness” video, which the Center for Communication in Medicine produced in 2003. The 4 patients featured in the video shared candid observations about their experiences. In previous blogs I’ve referenced some of their comments. Yet, upon re-reading their words, I am reminded that their perspectives are as relevant today as they were 18 years ago.

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We Do Not Remember Days, We Remember Moments

As I’m getting older, I think about what has passed, passing and to come. I am catapulted back in time to my tenure as medical humanist at Southwestern Vermont Regional Cancer Center (2002-2005). What comes to mind is the celebratory ritual upon the completion of each patient’s treatment, which was an array of balloons and bouquet of flowers. It was a lovely gesture that most patients embraced with the belief they were cured. And many were—but there were no guarantees.

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A Vehicle for Hope

She was diagnosed with ovarian cancer 2 years ago. Surgery and countless infusions of chemotherapy, with no sustained remissions, have not deterred her from continuing to work in her studio. Options for treatment are now limited as is her energy level.

Her doctor has requested a medical humanist consult to assess this patient’s understanding of treatment options and prognosis. “I was not prepared,” she tells me, “to hear my doctor say ‘I hoped I would not have to have this conversation with you.’”

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