The Illusion of Caring—is That Enough?

I recently stumbled upon a writing exercise completed by a patient who participated in the “Writing is Good Medicine”TM, program, which I created to help patients put words to their experience of living with illness. Participants were encouraged to share their writing with family and healthcare providers in order to open communication about issues and concerns. For one exercise I posed the question, “What do you expect from your doctors?”

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UNCERTAINTY IS THE REFUGE OF HOPE

UNCERTAINTY IS THE REFUGE OF HOPE
The Journal Intime
Henri Frederic Amiel

Recently, I was reminded of a patient from time passed who had asked me, “How does one live with uncertainty?”

In The Wounded Story Teller writer and patient Arthur Frank notes, “When a doctor tells us we are sick they are not just diagnosing us—they are initiating a new chapter in the story of our lives. What would it be like for patients to tell their stories and doctors to read them?”

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